When I first received the diagnosis of Lymphedema, it was a bitter sweet experience. I have had problems with my legs swelling for many years and Doctors treated it as if it were edema (swelling), when actually it was much, much more. I have no bitter feeling about that though, because they simply did not know, as this is a fairly new discovery in the United States and a lot of Doctors are still very unfamiliar with it, with what causes it and how to treat it. So I take every opportunity to learn about that which afflicts me. I decided I have to take my health into my own hands. In case you have not guessed I am an over achiever (if there is a such thing) (smile). But Bitter Sweet because I was happy to know that my weight and my swelling was not due to my mishandling or misdoings. But sad because I had something "wrong" with me that I could not control (I have control issues needless to say). and it seems that Doctors could not "control" it either.
I visited the Doctor (remember I told you about him, Mr. Doctor Man) and he informed me that he cannot administer another dose of steroids into my knee for two more months. The sad thing is I wanted another dose, (pain is starting to control my life), So in an effort to alleviate the pain, I was given a topical cream than can be used three to four times a day but the side affects OMG! can be fatal...I DON'T THINK SO!!! NOT ME, CAN'T DO IT (wouldn't be prudent) They tell you to do this without giving you all the information, but in educating myself I find that the side affects are way to much. To you I say listen to the Doctors, follow the instructions but be aware of what you are putting into your body, don't be afraid to ask questions and to seek answers. It is your body, don't be afraid to tell the Doctor when you feel "a little funny". The possible side affects are--because someone reported what they "were feeling." One thing that I learned is that I cannot control this...alone. I need medical help and support from family and friends... (my list of friends are few), I am trying to concur this, all I can say is... I'm still growing, I'll get there. To you I say, keep on keeping on!!!
I visited the Doctor (remember I told you about him, Mr. Doctor Man) and he informed me that he cannot administer another dose of steroids into my knee for two more months. The sad thing is I wanted another dose, (pain is starting to control my life), So in an effort to alleviate the pain, I was given a topical cream than can be used three to four times a day but the side affects OMG! can be fatal...I DON'T THINK SO!!! NOT ME, CAN'T DO IT (wouldn't be prudent) They tell you to do this without giving you all the information, but in educating myself I find that the side affects are way to much. To you I say listen to the Doctors, follow the instructions but be aware of what you are putting into your body, don't be afraid to ask questions and to seek answers. It is your body, don't be afraid to tell the Doctor when you feel "a little funny". The possible side affects are--because someone reported what they "were feeling." One thing that I learned is that I cannot control this...alone. I need medical help and support from family and friends... (my list of friends are few), I am trying to concur this, all I can say is... I'm still growing, I'll get there. To you I say, keep on keeping on!!!
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